Things Will Get Better With Time :)

I have been on the Plaquenil for a few weeks now and seem to be doing better.  My aches and pains are down considerably and I am not as tired as I had been in the past.  The only down side of this medication is the fact that it makes me so horribly nauseated and my mouth waters like you wouldn't believe!  At first I wanted to just quit it and deal with the Lupus head on, but my dad let me know that it would be worth it in the end.  He said he has taken the medication for his Lupus for years and has no side effects from it, so I have kept taking it only missing about three doses while fighting with my insurance company to pay for another refill.  I just hope that my insurance company realizes that this is a lifelong thing and there may be more medications that I need to control my symptoms, so I hope they are ready. 

I still get those painful headaches around the brow line and behind the right eye and my vision gets pretty blurry at times and I don't know if these are Lupus side effects or a medication side effect.  I am also having issues with breathing.  Not like I am dying or anything, I just feel like someone is sitting on my chest and I can't take a full breath.  I don't know if it's allergies, medication or Lupus, but I guess I need to figure this all out don't I.  Speaking of, I still haven't gone to get more blood tests, I think I am just putting them off because I don't want to deal with the inconvenience, but then if I keep putting off my mom will call and give me another Lupus lecture and I really don't want any more of those. 

We are going camping with my sister and some friends and I am really excited.  I never get out of the house so I look forward to every second of outside time.  I just hope that my sinuses can handle the outdoors for a few days so I can have fun.  The ladies are going to Canal Days and hopefully finding some cute stuff too!! I just can't wait to have some fun and be around friends and family :) 

Welp, I should get back to work so I can make at least a few dollars today LOL!

New Job, Blood Tests and Biopsy OH MY!

It's been a few weeks, but I am still alive.  I found a new job within a few days after being "laid off" and I actually like my current job, though I am pretty slow while learning new styles, doctors and procedures. 

I went to the dermatologist about a month ago to have a look at my rash that I have had for a few years.  Unfortunately, the NP (nurse practitioner) thought it looked suspicious for Lupus so we did some blood work, which came back positive with very high numbers.  My ANA was 1:1280 (normal being 1:80) and my SSA was 8 (normal being 1).  I was then informed that I needed to get a punch biopsy, which is actually as icky as it sounds.  A big, huge, ENORMOUS 3 mm hole punched into my shoulder for a tissue sample.  I made Mike go with me and he just laughed at how I was acting.  The NP had to actually lay me back and give me an ice pack and juice.  I HATE needles and now I REALLY HATE anything that has the words punch and biopsy in it.  I will never go through a biopsy again!  I don't care what I have, that thing sucked big time.  After it was done, and I was about to die from being a freak, she actually wanted to give me a stitch!!!  Yeah right I thought and I told her that I would rather bleed out all over the floor then to have her put a stitch in me. 

I had the biopsy on Monday, so I should hopefully hear the results within the week.  I am so over the waiting and just want a final YES/NO answer to why I am constantly depressed, have headaches, constantly tired,  aches/pains and this darn rash, and that I can attribute them to something with a name and that I just don't just feel this way.  There is no way this can be a normal life to live.  Is this really how all people feel?  Tired all of the time?  Depressed all of the time?  Pain all over?  Come on!

Up In The Air!

My whole life right now is up in the air. Losing my job isn't something that I necessarily need right now and it just makes it worse knowing that MY job is being shipped to overseas workers who don't even speak my language, but, for some reason, can somehow type dictations by American doctors.  OH! AND the company who is taking those jobs? They are hiring proofreaders! What a joke! All I have to say is, CEO of Urology of Indiana, you get what you pay for bro' and we will see you back in the US trying to find a decent company to transcribe your work in the future. You know, after the wonderful overseas workers totally screw up your work, but for a decent price, right?

Apparently, I may be moved to a different account with the same company, but I have no idea what to expect. I haven't heard anything from our home office and it's really disappointing, but understandable. This contract was about 35% of their workload, so I guess things are somewhat chaotic there. Mike said that I will have no problem finding a new job, but that isn't the point at all. I, along with many others in this world, hate change and I really don't like having to get to know new systems and new people. I just think that God doesn't like it when I get too comfortable in my life AND I really need to stop complaining about things! Earlier this week, I was complaining that I was so sick of hearing about penis' and vagina's all day and now, I don't have to, BECAUSE I DON'T HAVE A JOB! LOL. God is very literal and you have to be careful what you say to him or he will do just what you want, except it won't be the way you expect it at all.

I have been so down and out this weekend that I am glad that I sent the boys up to the cabin with my family. They really don't need to see their mommy this sad. They are on their way home now, so I have to get into my happy and "everythings fine" mode before we get them.

I just have no clue what the next days, weeks and months hold for me and my family, I just pray that God will cover us and watch over us cause we will be callin His house a lot!

Here is a pic of my neice and my baby on the train at the zoo!